Doin’ the do-si-do’s impossible to do by yourself.
I spent lots of years hanging out with girlfriends or not hanging out at all, which was more likely to be true. Most times, none of us even had someone who filled in for love. I’m not ashamed to say there are times I would’ve settled – my need for affiliation was that great – at least for awhile. Although I did draw the line at that Mafia guy.
Being un-paired suggested to me that who I was was unacceptable; someone whose standards, suggested Mom, were sometimes too high. This time she was right.
The upshot was a 10-year marriage I never wanted and that didn’t work, anyway.
And when, post-divorce, I found someone to love, conundrums followed double-behavioral-messages and I was as heartbroken and needy as if I were one of those women who stand uncomfortably on the periphery of social situations. How humiliating that, when I bought myself a dozen roses to make him jealous, he knew no one else had done that but me.
If you haven’t been there, done that, and are newly-bummed by Valentine’s Day, here are some thoughts:
1. Scoundrels are plentiful. Scoundrels will always be scoundrels. Scoundrels become scoundrel-ier the more you like them.
2. Singles gatherings are very sad. While such encounters are billed as “fun”, they never are. They’re too often a forum for people to tell their bad/sad story. While good forums for social science researchers, mixers like this can suck the breath out you for weeks.
3. Visit the zoo. Animals who live in enclosures have other fish to fry so they’re not upset when your dump truck of emotions backs onto their turf. Just don’t dump on their food.
4. Develop a mental solidarity with women who become collectors of cats. Every cat-loving woman I’ve ever met understands how this happens, and is comforted by knowing that homeless felines are plentiful if all else fails.
5. Diet only if you want to. A hungry person is a grouchy person, not at all lovable. By the same token, if you’re ashamed of evidence of those ice cream orgies, remember that a shamed person often lies.
6. Going to a bar is noisy, phony, expensive, sometimes dangerous but often depressing, especially when your friend gets hit on and you don’t. People sucking up the bar scene are generally alcoholic, shopping for a good cut of meat, or both.
7. At the first sign of abuse run. Fast and far. Never look back.
8. Everything you’ve ever heard about kissing frogs is true. These days you really can get warts.
9. While the world feels like Noah’s Arc. fact is that with the divorce rate at 50%, out there’s a pretty big pool of people rejected by someone else. And they’re yours for the taking.
10. A clean bill of health is as important as it was to have a passport in Nazi Germany. The consequences are about the same, too.
Pairing up is about lots of things, many of which we have no control over, like the biological imperative to reproduce our species, and to protect what we create. Humans are meant to affiliate; we’re social animals who rely on, and need, each other. The herd is enormous – 7 billion and growing.
The odds are in your favor.
Kathe Skinner is a Marriage & Family Therapist and Relationship Coach who’s been in private practice for the last 17 years. She works especially with the invisibly disabled. Kathe finds real-life adventures in Front Range Colorado, where she lives with husband David and their hooligan cats, Petey and Lucy. Neither of them has square danced since they were in 6th grade. Learn more about Kathe & David Skinner and the Couples Communication Workshops they teach at http://www.BeingHeardNow.com and be sure to keep visiting Kathe’s blog at ilikebeingsickanddisabled.com. P.S. Pass it along!
©2014, Being Heard, LLC
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For those of us who are disabled, invisibly so, preparing for weather that turns wintry follows a simple self-care rule: stay inside.
As multiple sclerosis has progressed in me, simple tasks loom large.
Accumulation of simple tasks makes negotiating my environment literally hazardous to my health.
And I’m not alone in what can happen:
Impaired mobility. “Give me something to hold onto, like a railing, or a walker,” I said confidently, “and I’m good to go.” This from a woman who managed the unbelievable – falling down and taking the shopping cart with her. Not just with her, on top of her. The same woman who stepped off a sidewalk and fell face-first on her rollator into Chicago traffic.
Adding ice, snow or both increases the danger, whether I want it to or not. Cold temperatures stiffen already-Frankenstein-like limbs, reduce feeling, and can even shut down body functions altogether. For me, any extreme of temperature, hot or cold, and I look and act like a zombie.
Impaired senses and abilities. When it’s cold, the body’s heat is centralized to protect the core. Extremities function poorly, if at all. Try counting change at the grocery store, or picking up something you dropped. Even bending over is dicey and can result in a tumble. Even worse? Getting up again.
People with breathing difficulties may struggle, even with little or no exertion. Arthritis sufferers are crippled all the more. And the head-injured’s thought processes slow. way. down.
Anything already stressed responds negatively to even more stress. Think of the knees of someone overweight: when chubby becomes obese, knees already weakened break down when more weight is added.
Of course not everyone will have such a dramatic response to arctic-like conditions, but some will. For me, balance and strength, ability to write, well-being and fatigue, mood, motor skills, bladder control, cognitive functions, like word finding, are some of what fall to unacceptable levels.
It’s just plain dangerous. A wheelchair-bound client of mine was hit by a bus when the driver’s vision was impaired by a snowstorm – he didn’t see her crossing in front of the vehicle. My massage therapist suffered brain damage when she hit the pavement after slipping on ice in the parking lot.
Our focus on independence may cost us, like the guy who refuses to leave when the flood waters rise. Thinking about who picks up the pieces doesn’t cross our minds.
Can you afford to get stranded for hours?
Can your heart or lungs hold up to strenuous efforts to free your car from a snow bank? What happens when your body’s attempts at staying warm mess with your blood sugar? Or the stress of the whole ordeal brings on pain and diarrhea?
I have a highly polished ability to ignore what I don’t like. I especially don’t like staying home on those arctic days when others are doing ordinary things, like going to work. This is true even though experience tells me how I’ll hurt my body, mind, and self-esteem by ignoring how the m.s. in me behaves in harsh conditions.
Instead, control what you can. Don’t know about you, but I already know what happens when I ignore what that is.
Kathe Skinner is a Marriage & Family Therapist and Relationship Coach working especially with the invisibly disabled. She looks for real-life adventures in Front Range Colorado where the environment’s sometimes restricted by weather extremes. Currently, she’s cleaning up her home office while groovin’ to the oldies. A pirate’s treasure is stacked on the floor; who knows what she’ll find in all that paperwork? Learn more about Kathe Skinner and the Couples Communication Workshops taught by Kathe & David at http://www.BeingHeardNow.com
©2014, Being Heard, LLC
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So when I head straight toward the bushes at the entrance to my building it isn’t surprising.
Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group. Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease.
Instead, it freaked me out.
Big time downer.
Especially when a guy lost his balance and landed on his butt in a bush. That he laughed it off was horrifying.
I understand, now, the reason he laughed. Not only is laughing at the faux pas around the commonplace common, but situations that elicit that kind of response are also all too common.
The reality he must’ve experienced then is one I now share. Today I laugh, too. Because it’s truly comical at times and also because laughter is socially reassuring. “It’s alright, folks. I’m alright. Nothing to see here, move along.”
Knock wood, I’ve yet to experience anything dire in my navigational mistakes. Embarrassment to be impaired in public is what hurts. Most of us don’t know what to do in a situation like that. I put lots of effort into looking unimpaired, but when I catch sight of myself in a shop mirror, the reality of how I walk, for example, isn’t normal at all.
When I use an assistive device, a rollator in my case, parents scold their children for staring. I’ve yet to hear mommy or daddy use the opportunity as a teaching moment to talk about disability; rather it’s “don’t stare” before hurrying away. No wonder society hasn’t made much progress in accepting the disabled community who, except to children, remain largely invisible.
Recently, Disability.gov blogged an article about steps to take when being newly disabled.
It’s worth a read, especially if you’re not.
Specializing in couples work, Kathe Skinner is a Colorado Marriage & Family Therapist and Relationship Specialist. She works especially those couples where invisible disability is present. For over 10 years, she and husband, David, have been Certified Instructors for Interpersonal Communication Programs . Find the schedule for their next Couple Communication Workshop at http://www.beingheardnow.com© 2014 Being Heard
I don’t know when it became fashionable to identify pregnancy as an adventure à deux. It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods. I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips. With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge, albeit one that affects the relationship although it is physically experienced only by the woman.
Not to make it one-sided, men’s experiences are extraordinary, too, and may include being the target of a woman’s whacky moods or being the late-night junk food scrounger. For guys, it hits that the two of you are now a family, with all the attendant expectations to be the one who forevermore protects and provides.
Without a doubt there are many, many women for whom pregnancy is a delightful experience. The glowing, the growing, and giving life is an experience like no other. Pregnant women and moms belong to an exclusive club that has unbend-able membership rules. So even if it was the two of you being pregnant, only one of you, in the strictest sense, is a mom.
It’s the same when a woman is disabled or chronically ill. Only one of you is impaired even while both of you — your relationship — can be impaired. Having an invisible disability can be the worst of all.
Our society looks for proof; needs to name it; needs to touch it or otherwise experience its reality. You can’t be “a little bit pregnant”; you either are or you’re not. Pee on a stick and you prove it. With invisible disabilities, there’s no pee test. For some people, taking it on faith is harder than believing that what isn’t seen is true. For example, not being able to prove the existence of god doesn’t mean god doesn’t exist. Obviously, it’s the emotion surrounding belief that counts; to disbelieve or doubt a person’s physical or emotional perceptions is tantamount to discrediting someone’s very existence. The truth of it is immaterial, while the emotion surrounding such thoughts is what counts. The thoughts may even be rooted in jealousy of a sort – “What, so you get a break but I don’t?” “Buck up, you’re just being lazy.” “I worked all day but I still have to make dinner and do the laundry and get the kids to bed before I can sit down and catch my breath and where are you? in bed.”
Quantification when invisible disability is present requires a different yardstick but most of all it requires belief, support, and compassion.
Adding a stress load to any system that is already compromised results in a predictable, and usually disastrous, outcome (think of how a building with cracks in the foundation responds to an earthquake). The same thing happens when an already dysfunctional body system is unable to respond well when stressors are piled on. Such stressors may include walking through a mall or having relationship difficulties.
“We’re pregnant” or “we’re disabled” is an implicit bonding between partners. Life-changing events happen from which there is no return. Legal sanctions apply in both situations: the 20% of women, nationwide, who are disabled are entitled to lifetime support; children until they reach the age of majority. Society doesn’t seem to have recognized that the “we” of marriage with children and the “we” of disability in a relationship are the same thing.
To say “we’re disabled” says that both partners are in it together, that there is emotional and physical support of the partner who is less capacitated. Pregnancy usually involves the active participation of both partners while acquiring disability isn’t chosen by either partner. Parenthood never ends, just as disability does not; a major difference is in the expected trajectory – that parenting gets more pleasurable once the nest is empty, while disability often does the opposite. Disability is different in that there is no consent, no pre-planning, and certainly no enjoyment in acquiring the condition.
Kathe Skinner is a Relationship Coach in private practice. Specializing in relationships, especially those with invisible disability in the mix, she offers both in-person and web-based programs for couples. See http://www.BeingHeardNow.com to find the right program for you!
©Kathe Skinner, 2012
As a therapist with multiple sclerosis, and a Board member of the Invisible Disabilities Association, I can assure you that those with physical illnesses, esp hidden ones like cancer, ms, lupus, Crohn’s diseaes, fibromyalgia, anxiety, depression, etc., are not always treated with dignity. There are still people who will not hug someone with cancer for fear of “catching it”. An ms client was escorted from a grocery store after she fell into a display; the assumption was she was drunk, not that she fell because of balance problems. Read about my own experiences with people’s assumptions, misperceptions, and misunderstandings on my blog, ilikebeingsickanddisabled.com. and in my article for the government’s site, disability.gov, http://usodep.blogs.govdelivery.com/2012/07/25/looks-can-be-deceiving/. Mental health issues are as much a part of invisible disability as physical health issues are. Parsing them dilutes the effectiveness of advocacy. Without ignoring the special needs of any group under the umbrella of “disabiltiy”, it might, at some point, be worthwhile to give up the “me” in exchange for the “us”.