SOMETIMES YOU OUGHTA BE SCARED

clown hugBells should go off in your head if you’re walking in the woods and a clown in a bunker’s offering free hugs.  

Or when your guy grabs your shirt, slams you up against the wall, and says you don’t wanna make him angry.

And the whole theater’s screaming at that dumb young thing not to open up when the doorbell rings at midnight and nobody’s expected.

I’m not generally an alarmist although my husband David would disagree.  I do worry about fire starting in a trash barrel where he’s dumped grass clippings.  Or being afraid things are gonna blow up.  Or when I feel eyes on me when I’m working late by the open window in my first floor office and I can’t help myself I just have to look.

One summer my panties started disappearing off the clothesline, hang-up calls began right after my soon-to-be-ex left the house, and the guy across the street would make a racket so I’d look up to see him standing naked in his doorway.  When the phone rang at 2 one morning and the soon-to-be hustled me into the dark backyard I thought yeah, sure, I’m gonna get whacked — he had lots of, uh, connections; I didn’t for a second believe the police were evacuating the neighborhood.  But they were.  That spooky ass guy shot a neighbor who was coming home from shift work.

A bit after I rented out my condo, the woman whose doorway was a few feet away from mine was strangled at home then dumped in the woods. The daughter’s boyfriend went to prison for murder in a sordid story worthy of a bestseller.

Like people in an abusive marriage or those who return from war, I can talk about what’s happened to me as if it had happened to someone else.  Traumatic stress is often numbing and, whether the stress is long- or short-term, the need for self-protection can make us look (and be) detached and dispassionate.

Danger exists in trusting others even as protection is so desperately needed.  Laying down the guise, being vulnerable and exposed, is almost literally a deadly challenge that many won’t choose.

Traumatic stress is so often unexpected — who would set themselves up to be traumatized? — we cannot prepare or protect our psyches from it.  A system-wide shock indicates that everything in our world — most especially those to whom we are vulnerable like spouses, parents, children, friends as well as surroundings that once felt safe — is now suspect.  Add to that the invisibility of chronic, traumatic stress and the difficulty of  recognizing or relating to it adds to misunderstanding and further isolation and loneliness.

Traumatic stress can be vigilance run amok.

The experiencing, fearing, seeing, remembering of violence and harm can derail our thoughts and emotions, often forever.  Like someone who puts and keeps themselves in line for abuse, or those who think themselves immune to repeated horror, all of us need to realize that horror commands a price.  Similarly, we need to know that sometimes, not always, we can predict nasty experiences and seek to avoid them.  Problem is, the invisibility of stress disorders can mean that some people are less in control than it seems.  The creed of healthcare workers, protectors of public safety, combatants, and others who serve reinforces our expectations — and their own — about invulnerability.

Sometimes, vigilance is underrated.

Putting ourselves in charge, like not hanging out with somebody who slams you against a wall, is a proactive step to avoiding traumatic stress in the first place.  And when you can’t avoid getting bummed out, talking with a professional helper can expiate what may be stuck in your head.  That’s necessary if you want to be able to live your life without looking over your shoulder for clowns.

Kathe Skinner is a Marriage & Family Therapist in private practice who specializes working with couples, especially those for whom invisible disability — like PTSD — is part of their relationship’s mix. She and her husband David hold Couples Communication Workshops that help inoculate couples from the stress that a poor relationship can bring.  Register now for the lateswt workshop at www.BeingHeardNow.com

© 2015, Being Heard, LLC 

THAT GIRL KEEPS FALLING ON HER BUTT

fall-down-stairs.jpgMy balance, isn’t.

So when I head straight toward the bushes at the entrance to my building it isn’t surprising.

Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease.

Instead, it freaked me out.

Walkers, wheelchairs, canes, crutches – and me, invisibly disabled, in high heels looking at a future unable to wear them.

Big time downer.

Especially when a guy lost his balance and landed on his butt in a bush. That he laughed it off was horrifying.

I understand, now, the reason he laughed.  Not only is laughing at the faux pas around the commonplace common, but situations that elicit that kind of response are also all too common.

The reality he must’ve experienced then is one I now share.  Today I laugh, too.  Because it’s truly comical at times and also because laughter is socially reassuring.  “It’s alright, folks.  I’m alright.  Nothing to see here, move along.”

Knock wood, I’ve yet to experience anything dire in my navigational mistakes.  Embarrassment to be impaired in public is what hurts. Most of us don’t know what to do in a situation like that.  I put lots of effort into looking unimpaired, but when I catch sight of myself in a shop mirror, the reality of how I walk, for example, isn’t normal at all. 

When I use an assistive device, a rollator in my case, parents scold their children for staring.  I’ve yet to hear mommy or daddy use the opportunity as a teaching moment to talk about disability; rather it’s “don’t stare” before hurrying away.  No wonder society hasn’t made much progress in accepting the disabled community who, except to children, remain largely invisible.

Recently, Disability.gov blogged an article about steps to take when being newly disabled.

It’s worth a read, especially if you’re not.

Specializing in couples work, Kathe Skinner is a Colorado Marriage & Family Therapist and Relationship Specialist.  She works especially those couples where invisible disability is present.   For over 10 years, she and husband, David, have been Certified Instructors for Interpersonal Communication Programs .  Find the schedule for their next Couple Communication Workshop at http://www.beingheardnow.com© 2014 Being Heard

THE RORSCHACH WENCH.

the-aestate-color-rorschach-inkblot-ink-blot-green-acid-art-print-painting

I keep a book in my office and if I had a coffee table, it would be on it.

It’s red, with a coffee spill down the front that’s dried into a Rorschach-kind of thing.  Nifty for it to be in a therapist’s office.

Inside, dozens of clients have written their “should’s”.

It’s not instructive to describe what they said; more than likely, their self-flagellations are the same as  yours.  What catches the new subscribers is how similar their self-flagellations are.  Put another way, there’s nothing special in their dysfunctional thinking.

Back when I was exploring how should’s get perpetuated, I was stunned and amazed to find myself described in the exact words I’d always used in describing my neuroses (notice I used the plural).  Admittedly, there was disappointment in seeing myself laid out like some common Rorschach wench.   I suspect that others, too, hold their depression, anxiety, mania, whatever, as a sort of badge of differentiation from others.

For others, as it was for me, depression is powerful; it was the coin of my realm and the way I bought into the realm I inhabited growing up.  Depression can get attention, especially when nothing else seems to.  That can be true in a  marriage where one partner exists with an invisible disability.   And just like for the kid who acts out, it’s attention of some kind, even if it bears a high price.

Being a therapist, consequently, has been double-edged: one edge cuts through the dysfunctional thinking, the should’s, the irrespective unfairnesses; while the other is sad to see those defenses so cut down.  What I do in my office forces me to be embarrassed at my own mental laziness.  Being depressed is hard; so is being anxious or manic.

But hey, it’s hard even when you’re not.

Kathe Skinner is a Marriage & Family Therapist and Relationship Coach in Colorado Springs, Colorado.  She comes by depression naturally as well as artificially and has recently added anxiety, for which she can thank multiple sclerosis.  Petey and Lucy, the two hooligan cats Kathe and David share their lives with, are too annoying to let depression settle too quietly in their home.  Kathe and David get out of the house by teaching partners the communication skills their relationships need.

WOMEN’S LIB IS A LIE

Speaking from a disabled woman’s point of view, living the “lib lie” in relationship simply doesn’t work.

The “lib lie” I’m talking about is putting career before relationship, being damned if I’ll make cacciatore, or being complimented for how I look.

Where was my head all these years.  I’ll tell you where: in the conference room, the kitchen, and in front of the mirror.

Truth be told, I like making cacciatore — and being appreciated for it.  The same as anybody would, including guysfishy.  Liberation doesn’t stop at individual freedom; its true worth is in how liberated our partnership is.  Oh, stop — I’m not talking about three ways.  See, if one partner realizes cultural or family baggage enough to detach a bit from it and the other partner is clueless, the relationship’s pretty lopsided.  But hey, some partners like their partners a tad underdone.

Clueless for real or clueless pretended, either path leads right back to a problem that’s repeated itself for generations.

Sherod Miller, co-founder of Interpersonal Communication Programs, defines a healthy relationship as the collaboration of two strong people “bridging” to each other across a committed lifetime.  Paula Derrow, writing in The New York TImes, calls it “leaning in together”.  Writing recently about her marriage in The New York Times, Paula describes a marriage right out of Home Depot.

A do-it-yourselfer, her marriage to another do-it-yourselfer spanned two states.   Their finances were separate, and so was ownership of their separate homes.  Except for weekends, each lived a separate life.

Talk about distancing.

When Paula was laid off from her job as a writer, she had reason to need her husband in very real ways, one assumes for the first time. Lying awake, the writer struggled with questions about her independence, whether she could afford to continue living separately, and whether her husband was encouraging and supportive only as a way to get her to come live with him and cook up a cacciatore.

I won’t say where Paula Derrow’s head was, but to come to the realization that her marriage was about the two of them together, not separately, is, to put it charitably, wrong-thinking.

More than most, those of us with disabilities, invisible or not, have had to come to terms with the lie that we can make it on our own.

The poor state of the world economy has left millions out of work, stressing personal worth and identity.   With so many jobless, you’d think social perception about being unemployed would’ve changed; it hasn’t.  Role expectations die hard.

Changes in the social order are happening all around us; role-turbulence is no longer reserved for the disabled or marginalized others.

These days, anyone can become marginalized.

Relationship’s great test is how to be together without losing oneself; how to get from one place to another while travelling together.

Kathe Skinner is a Marriage & Family Therapist and Relationship Coach specializing in work with couples whose relationship is affected by invisible disability.  Like most of her generation, she has been powerfully affected by the Women’s Movement of the 1960s and 1970s and has had trouble integrating that independence with the sometimes-limitations of multiple sclerosis.   She and her husband David live in Colorado where they teach couples to collobate their way to happier relationships.  Read more about she and David’s Communication Workshops at http://www.BeingHeardNow.com.

CHOOSING TO BE DISABLED.

Even if the claims that candy causes behavioral problems are anecdotal, one thing is for sure:

An American diet full of sugar is a significant cause of childhood obesity.

But it tastes so darned good.

The Centers for Disease Control report that 1 in 6 children between the ages of 2 and 19 is obese. Aside from the psychosocial aspects of being bullied or having no date for the 8th grade dance, there are significant health risks.

Like asthma, high cholesterol, high blood sugar, cardiovascular disease, Type 2 diabetes, and, as researcher Ashleigh May says, mental health problems.

Sugar induces tolerance, meaning the more you eat the more you need to feel satisfied. What’s recommended for children’s sugar intake is a mere 6-9 teaspoons a day while what’s consumed is at least 4 times that, Halloween candy not included.

At some point, people can make choices about how their lives unfold; whether or not choices are made is harder to pull off than it is to suggest.

Most of us who are disabled, invisibly or not, wouldn’t choose disability to be part of our lives. How horrifying is it that some obese people have that option and choose otherwise.

Although she was a chunk-of-a-baby, Kathe Skinner didn’t grow up that way. A Marriage & Family Therapist and Certified Relationship Coach, Kathe specializes in working with couples, especially those when invisible disability is part of the relationship mix. She and husband David reside in Colorado with their two cats, Petey and Lucy. Lucy and David could stand to pass on a second helping of kibbles.

INVISIBLY DISABLED OR NOT, 5 GOOD REASONS TO REVAMP YOUR LIFE

659894f27914674cc2dbb0523225d056If you’re like most of us, change is uncomfortable.  That applies whether we’ve asked for the change, or not.  Change can be as small as changing your haircolor or as big a deal as moving across town or across country. Some adults mimic Peter Pan’s Lost Boys, adamantly insisting they won’t grow up. If that’s you or someone you care about, check out five good reasons it’s a good idea to view change as a relentless part of being alive:

  1. Gain Perspective:  I’ve got an old pair of glasses I wear around the house.  While I’m used to them and they’re comfy, the truth is that I’m limited in what, and how well, I see.  Not seeing clearly what’s in your life is like a horse wearing blinders.  True, you remain focused on one spot, but the trade-off is how much gets passed by.  What comes to mind is the professional focused on business success who complains, years later, about the unattended soccer games and school plays.
  2. Freshen Up:  Habit is soothing; knowing what you’re doing and how to do it takes away our fear of appearing incompetent.  What’s left out, though, are new experiences.  Meeting new people, going to new places, trying something different are examples of keeping our brains engaged.  Brain science suggests that people who remain engaged stave off the negative side-effects of aging.
  3. Grow Up:  The 60s are gone, so are the 90s.  Even if those were the best days of your life, those days don’t reflect your world as it is now.  If  time-travel was possible, seeing what lies ahead would be an interesting and fun exercise.  Many cinematic characters have been given this gift — Jimmy Stewart in the classic Christmas film “It’s a Wonderful Life”.  What would you learn from a trip to the future?  And what would you have to change now in order to assure it? So what’s stopping you?
  4. Get What You Want:  Have eyes set on a certain job?  A new car?  A life partner?  When plans are made to acquire what we want, change is prominent in the mix.  For example, attracting a partner may mean you have to work on issues that are getting in the way, like trusting the opposite sex. When the burden of old thoughts is released, the domino effect of change starts in motion.  The effects include being more comfortable in your own skin, smiling more, being more positive about life.  Your changes affect everyone else in your life.  Everyone.   Amazing, huh?
  5. Keep What You Have:  When partners say, “That’s not the person I married!”, I say, “Good!”.   Aside from Bunny-Love-Sex, who would trade how the years have forged a new and different partnership?  Adding children, for example, insists on change from an “I” stance to the “we” stance of co-parenting.  All relationships insist on good communication and flexibility in order to be ready for change.  Without it, no relationships can grow,

Kathe Skinner is a Marriage & Family Therapist and Relationship Coach working especially with couples experiencing the effects of invisible, or hidden, disability.  As a military brat, growing up changed scenery more than for most.  As a child, she remembers seeing the black and white television production of Peter Pan.  Trying to fly off her bed became a months’ long obsession.  She lives her grown-up life in Colorado with her husband David, and their two cats; in a world of change, Petey and Lucy ground them.  More about Kathe and what she does can be found at http://www.BeingHeardNow.com.

THE JURY’S OUT.

I’m a fine one to talk.

“All change implies the acceptance of loss” is the line I berate my coaching and psychotherapy clients with.

Loss of function with invisible disability carries with it more than just the loss of “being able to…”  It’s how others’ attitudes might change.  Or how communication in bad hair daya relationship — married or not — is impacted.

Recently emailing with a colleague, another permutation appeared:  “All loss implies the acceptance of change.”

These days, for me, that applies even more.

Kathe Skinner is a psychotherapist and relationship coach living and working on Colorado’s Front Range.  She has been courting acceptance of the changes in her life for most of this year.  The results aren’t in.

LOVING

Love at its most true is not afraid to be hard. ~ Whitley Streiber

Love at its most true is not afraid to be hard. ~ Whitley Streiber

Married, in a relationship, or single, life is often ungovernable.

Through disability, chronic illness, divorce, break-up, deaths big and small where do we find respite from difficulty?

When can we stop being courageous?

So many of us lean on love to give us relief from life’s chattering.

If love were so one-dimensional, though, if all loving did was give us rest, would it still be lustrous?

What is easy, quantifiable, predictable soon loses our interest.

Whitley Streiber put it beautifully, “Love at its most true is not afraid to be hard.”  I agree (even if he is talking about aliens.)

Kathe Skinner is a psychotherapist and relationship coach, specializing in working with couples whose relationship is impacted by invisible disability and chronic illness.  Married to David for over 26 years, they live with kitties Petey and Lucy in the Front Range of Colorado.  Are there aliens cruising the skies over her home?  She thinks the logic is irrefutable.

PISTORIUS GUILTY OF MURDER? SAY IT ISN’T SO.

While apartheid has been legally abandoned in South Africa, it can still be a racially uneasy place.  But some questions cut across racial lines:  Is Oscar Pistorius guilty of murder?

It was a made-for-television story starring Oscar Pistorius, a double amputee running on bladed “legs” in last summer’s Olympic Games, and his girlfriend, Reeva Steenkamp, a beautiful model.  Life in a luxurious gated community.  Fame, wanted or not, right up there with South Africa’s idolized soccer players, Bafana Bafana (The Boys).

Think about it – a man who by anyone’s definition is disabled participating in the Olympics, traditionally a place where only legends Pistorius blade runner
belong:  the fastest and most durable; the strongest; people who soar highest and go furthest; who combine talent with heart and passion.  Athletes with demonstrated ability to endure and transcend pain and to remain focused despite it.

Unique in the world, Olympians are the best of the nations that send them.  World-class.  And Oscar Pistorius belonged.

Even so, efforts were made five years ago to ban him from competing with the big boys because, get this, his so-called “cheetah legs” gave him an unfair advantage.

Funny that able-bodied runners would be threatened by the introduction into their midst of someone with no legs.  You can’t make this stuff up.  Legs that were replaced not by bionic ones, but by artificial ones.  Oscar didn’t flip a switch and go smokin’ down the track like some crazed stock car.  He never cruised into first place.  His swiftness wasn’t accounted for by Mercury-like wings affixed to his artificial feet.  Like every other athlete, he earned the right to run.

On Valentine’s Day, Oscar Pistorius is said to have murdered Reeva Steenkamp.

For me, the Pistorius story is especially tragic.

I’d probably win in Vegas betting that Oscar Pistorius never intended to be a symbol for many who are disabled.  But he was.

It was 2012, mid-summer in London, and the media couldn’t ignore the runner’s Cinderella story.  In the final heat, Pistorius ran the 400 meter against record-holder Kirani James.  Their exchange of name bibs and embrace at the end of the race was moving; it spoke of mutual respect and the honor James felt to share the track with such a determined, worthy, and ground-breaking opponent.  I’d like to think it was James’s way of giving Pistorius the keys to the clubhouse, heretofore for the able-bodied only.  Irony of ironies, James is black; Pistorius is white.

Despite this Olympic nod, the Paralympics, which followed, were not televised (not that I could find, anyway.)

Never meaning to, Pistorius put disability smack dab in the faces of people watching at home.  There’s always been an element of able-bodied gawking at the disabled; a “somewhere else but not in my neighborhood” flavor.  The South African athlete brought it home to their neighborhoods, taking it out of the invisible realm of the Paralympics to the center stage of London in the summer of 2012.

Pistorius generated pride when he won and even when he lost, and the tears that often accompany such moments.  He was a winner in a world that often deems the disabled losers.

Pistorius bore a dignity in doing his job and doing it exquisitely.

Pistorius was modest in his remarkable accomplishments.stamp, portugal, paralympic, disabled athletes, runner, disabled

Pistorius never sought the limelight; he wasn’t boastful or militant.

And maybe that’s why the emotion Pistorius generated for me, as a disabled woman working with others who are disabled, was so great.  His victory was not for any cause, although I wanted it to be.  I wanted his courage to be the stuff of film, like the young Patty Duke (herself disabled with bi-polar disorder) as Helen Keller in “The Miracle Worker”.  Or Tommy, the pinball wizard of Pete Townshend’s rock opera.  Of politics, like President Franklin Roosevelt or U.S. Senator Max Cleland.

Heroism is rarely sought by heroes.  We make heroes because we need them to lift us from our realities.  Heroes overcome where we haven’t been able to.  They’re the youngsters still alive in our fantasies, reading comics and surmounting unfairness with a dexterity we only dream about.  I struggle as I weigh my need to flout Pistorius’s achievements as a disabled man competing in the regular world, with how I feel about the murder accusation he faces.

I’ve decided to let it rest.  The fact will always remain that Oscar Pistorius was the first double-amputee to win a gold medal in the arena of able-bodied world track.

For me, giving that kind of hope stands on its own.

k-cropped-4x6Kathe Skinner is a Relationship Coach, Certified Relationship Expert and Marriage & Family Therapist in Colorado where    she conducts communication workshops for teens and parents, couples, pre-marrieds, the invisibly disabled, and the over 50 crowd.  Kathe enjoys collaborating with other professionals in order to reach more relationships affected by hidden disability.  She sits on the Executive Board of the Invisible Disabilities Association, is a regular contributor to Disability.gov., and is an ardent-and-natural-teacher-without-a-classroom.  She has been diagnosed with multiple sclerosis for over 30 years.  More about Kathe at www.BeingHeardNow.com or at her blog, ilikebeingsickanddisabled.com.

How Come It’s “We’re Pregnant” But It’s Not “We’re Disabled”?

I don’t know when it became fashionable to identify pregnancy as an adventure à deux.  It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods.  I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips.  With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge, albeit one that affects the relationship although it is physically experienced only by the woman.

Not to make it one-sided, men’s experiences are extraordinary, too, and may include being the target of a woman’s whacky moods or being the late-night junk food scrounger.  For guys, it hits that the two of you are now a family, with all the attendant expectations to be the one who forevermore protects and provides.

Without a doubt there are many, many women for whom pregnancy is a delightful experience. The glowing, the growing, and giving life is an experience like no other.  Pregnant women and moms belong to an exclusive club that has unbend-able  membership rules.  So even if it was the two of you being pregnant, only one of you, in the strictest sense, is a mom.

It’s the same when a woman is disabled or chronically ill.  Only one of you is impaired even while both of you — your relationship — can be impaired.   Having an invisible disability can be the worst of all.

Our society looks for proof; needs to name it; needs to touch it or otherwise experience its reality.  You can’t be “a little bit pregnant”; you either are or you’re not.  Pee on a stick and you prove it.  With invisible disabilities, there’s no pee test.  For some people, taking it on faith is harder than believing that what isn’t seen is true.  For example, not being able to prove the existence of god doesn’t mean god doesn’t exist.  Obviously, it’s the emotion surrounding belief that counts; to disbelieve or doubt a person’s physical or emotional perceptions is tantamount to discrediting someone’s very existence.  The truth of it is immaterial, while the emotion surrounding such thoughts is what counts.  The thoughts may even be rooted in jealousy of a sort – “What, so you get a break but I don’t?”  “Buck up, you’re just being lazy.”  “I worked all day but I still have to make dinner and do the laundry and get the kids to bed before I can sit down and catch my breath and where are you? in bed.”

Quantification when invisible disability is present requires a different yardstick but most of all it requires belief, support, and compassion.

Adding a stress load to any system that is already compromised results in a predictable, and usually disastrous, outcome (think of how a building with cracks in the foundation responds to an earthquake).  The same thing happens when an already dysfunctional body system is unable to respond well when stressors are piled on.  Such stressors may include walking through a mall or having relationship difficulties.

“We’re pregnant” or “we’re disabled” is an implicit bonding between partners.  Life-changing events happen from which there is no return.  Legal sanctions apply in both situations:  the 20% of women, nationwide, who are disabled are entitled to lifetime support; children until they reach the age of majority.  Society doesn’t seem to have recognized that the “we” of marriage with children and the “we” of disability in a relationship are the same thing.

To say “we’re disabled” says that both partners are in it together, that there is emotional and physical support of the partner who is less capacitated. Pregnancy usually involves the active participation of both partners while acquiring disability isn’t chosen by either partner.  Parenthood never ends, just as disability does not; a major difference is in the expected trajectory – that parenting gets more pleasurable once the nest is empty, while disability often does the opposite.  Disability is different in that there is no consent, no pre-planning, and certainly no enjoyment in acquiring the condition.

Kathe Skinner is a Relationship Coach in private practice.   Specializing in relationships, especially those with invisible disability in the mix, she offers both in-person and web-based programs for couples.  See http://www.BeingHeardNow.com to find the right program for you!

©Kathe Skinner, 2012